Here are some of the current pieces of jewelry I've created in the past couple of months or so. My motivation has not bee very good and so I've not been very productive. Under these is an update about me and my stuffs. (It's a bit of a rant... so be fore warned.)
Jewelry is available thru my shop at
Okay, update... warning some of the following may have language (or abbreviated language) not suitable to the sensitive ears/eyes.
So let's see... life has been not so kind in the health department lately, fighting a very incompetent neurologist and waiting to see a potentially new neurologist. My attorney for my disability is just as concerned as I am about changing doctors in the middle of all waiting for the disability appeals hearing to be set. BUT at the same time I need better care.
My current neuro is so incompetent that every time I go in to see him I have to remind him that I had brain surgery! I'll mention it and his response will be "You didn't tell me you had brain surgery". OMFG... really???? EVERY TIME. It's right there in his notes, I know this because I have copies of his notes for each visit, I request copies frequently. (I need to request the notes again, since I've seen him a couple more times, ugh) He doesn't bother to look at them, even tho they are right in front of him on the computer screen of the laptop he has IN HIS LAP! When he prescribes medications, he doesn't pay attention to how many his is slapping on top of each other at a time and never looks to see what kind of interactions they have with each other. At one point I was on 5 anti-convulsants and he added a sixth, at which time he started weening me off of one and onto that sixth one. I had major reactions and after doing the research myself, found that there were severe reaction warnings for several of them.
When I go in to see him, one of his first things he does is start asking me questions about things he should have in the notes. Last time he asked me if he had ordered sleep study tests. WTF, that was one of the first things he did and that is the one thing he won't leave alone. At the first of every appt, he asks if I'm using my CPAP, because according to him I have sleep apnea, he seems to always remember that with no problem, tho seems to forget the reasons why I couldn't use it. Another thing I have to explain to him every time. Now let me point out that his secondary specialty is Sleep Apnea and Sleep disorders. (Wow imagine that!!!) So from the very first appointment with him he has pushed to blame all of my brain problems on sleep Apnea. According to the sleep study test that he ordered I have mild apnea (mind you he is the resident doctor who over sees the sleep study center he sent me to) and I have a few things to say about all that but anyone who has had one understands how all that works and how the heck are you supposed to get any sleep with wires and leads and straps on you during the tests... and NO I did not sleep well then or when I went back in for the cpap study. Tho according to them I sleep really well with the cpap. Funny... I don't remember sleeping much at all! (Hence why I spent 7 more hours in bed when I got home.) This stupid doctor tells me that he has sleep apnea and uses a cpap every night, and he has allergies and has no problem using his cpap because he uses prescription nasal spray. He says that using a cpap to regulate your breathing during sleep will help improve cognitive abilities and memory issues and fatigue and a whole slew of other things. That is funny ... considering he is using one and can't seem to remember from one visit to the next that I had brain surgery or that I have had tests that he ordered or that he prescribed all these medications or any of the other dozen or so things that have been said or done over the course of the last year. I mean really????
I am so sick and tired of neurologists that are in it to make money on the patient instead of treating the patient to get well or trying to defer the patients problems over to their secondary profession so that they can make more money off of you. I had one that was a psychiatrist and according to him all my brain problems were from being depressed. Last time I checked depression doesn't cause seizures or purple lips or loss of coordination or cognitive abilities. Really... come on people this is insane. I've been to several neurologists since my brain surgery and out of all of them I've only had one that was descent and he ran into a brick wall and acknowledged that he wasn't sure what to do next. (Which is why I looked for another one to take over.) This next one seems to have no secondary specialty other than neuroscience. With some luck maybe I'll finally get one that is interested in treating me properly. If not... I'm going to throw the towel in and just deal with it on my own!) As it is, I have to go to my appoints with at my current neurologist for appearance sake, if I plan on changing doctors, at least until my possible new doctor can continue from where things were left off (without the stupid apnea shit).
Frustrated and angry... no... not me. Ugh.
