
As far as me... Communication with this stupid Neurologist's office is non existent and it is really pissing me off. I have called that office 4 times and not gotten a return call yet. I called my primary care doctor and spoke to the nurse there and they called and requested the results to be faxed ... manged to get them and they called me this morning. The ACE levels were still very high, and on the lab report were scribbled notes from the doc that they are going to order more tests, a pulmonary test, a sarcoid skin test and there were other things scribbled that she couldn't make out. SO... they are going in the direction I expected.
Now it is just about getting the communication with this doctors office to improve... this lack of communication is unacceptable. But at least I'm on the way to a diagnosis of some kind.