Cybie's Corner

Tuesday, July 19, 2011

In need of funds so ... Shameless Plug

Visit my Etsy shop = Cybie's Originals

I am going to attempt to start working on more jewelry for my shop, maybe some more runes. I am also hoping to add a few other miscellaneous crafty things and some art prints. (with any luck my health will at least give me that much... prayers and/or healing energy is welcome!)

My doctor appointment today basically just confirmed the direction we are going in, tho I do get very frustrated with trying to communicate with Neurologists. They are narrow minded and don't always read up or research or listen to what you say. BUT thanks to my husband being with me and my persistence and research we are getting somewhere ... slowly. I have more tests ordered. The pulmonary function test and chest x-rays (in an attempt to rule out sarcoidosis -docs words) then finally got him to order a current MRI w/wo contrast.

With some luck sometime soon we'll have some answers... a treatment of some kind for relief of all this crap so that I can get back to life would be GREAT!

Also just continuing my seizure meds at 100mg for now. Follow up will be dependent upon what we find out from the tests ordered. SO... with all of that, we are in serious serious financial need to cover the copays and expenses of all these tests. OMG they are high. SO... I'm pimping my shop and am planning on pimping some art and if you see anything on my Deviant Art site that you would be interesting in purchasing a print of please message me!!!

My Deviant Art Page: http://cybelemoon.deviantart.com/
My Etsy shop: http://www.etsy.com/shop/CybelemoonPSK

Please feel free to spread the word, I need all the help I can get at this point! :D

Hugs to all!

Friday, July 15, 2011

On the way....

Haven't really done any artsy doodles this week. Having a long rough week. My daughter is now back in here in the DFW area, things didn't work out where she was and its a long long story. I'm happy she is here but really wish things had gone a little different. She had to give up a lot, including her car to get back home. :( I am not able to help her and that makes it even harder at this point. She is now back at square one, with no job and no car. BUT with a hard lesson learned.

As far as me... Communication with this stupid Neurologist's office is non existent and it is really pissing me off. I have called that office 4 times and not gotten a return call yet. I called my primary care doctor and spoke to the nurse there and they called and requested the results to be faxed ... manged to get them and they called me this morning. The ACE levels were still very high, and on the lab report were scribbled notes from the doc that they are going to order more tests, a pulmonary test, a sarcoid skin test and there were other things scribbled that she couldn't make out. SO... they are going in the direction I expected.

Now it is just about getting the communication with this doctors office to improve... this lack of communication is unacceptable. But at least I'm on the way to a diagnosis of some kind.